Fattori di resilienza e balbuzie

Creating resilience factors to improve life outcomes

Publisher Ryan Rivera is an advocate for understanding anxiety and its effects. In this article he gives some tips on creating resilience to cope with stammering.

Research over several decades has indicated that stammering can have a negative impact on a person’s mental health¹. Some theorise that stammering is caused by factors like anxiety and stress, while others believe it is the stammering that ultimately leads to/creates the mental health issues². The answer is probably somewhere in between, where stammering and anxiety are more cyclical in nature, with anxiety about stammering leading to more stammering.

Regardless of this, the reality is that adults who stammer can often find living a life of contentment to be challenging. Anxiety – particularly social anxiety – can make it difficult to bond with others and live a fulfilling life.

A study in resilience

Despite these challenges, many people who stammer are living perfectly happy lives. Researchers at the University of Sydney set out to find the differences between those living without the mental health burdens of stammering and those experiencing severe social anxiety. They found the following resilience factors:

-Health status – Overall health of the subject.
-Social support – How well subjects felt they were socially supported.
-Vitality – The subject’s energy level.
-Social functioning – Ability to communicate and interact with others.
-Fewer physical limitations – Physical fitness and ability issues.
-Greater sense of self-efficacy – Confidence in their own independence.

Particularly, they found that social support, self-efficacy, and healthy social functioning were the most important adaptive factors for resilience³.

Improving your resilience

Resilience isn’t necessarily something one can change instantly, but there are ways you can get started in each of these areas, and the hope is that over time you’ll find yourself better able to deal with the stresses of stammering – and of life.

Social support

Perceived social support is the belief that you have friends or family that truly support you. Those with social support often report more confidence, feel greater joy at their successes and less failure after their mistakes, and overall live a better quality of life.

Social anxiety can make it difficult to feel like you’re bonding with others. But where you receive social support is not as important as knowing that it’s there, which is why a great first step is to join a support group, so that you can interact with people that understand your situation and support your recovery. That little change will go a long way toward living with greater resilience.

“The hope is that over time you’ll find yourself better able to deal with the stresses of stammering – and of life.”

Self-efficacy

Self-efficacy is described as the belief in your ability to overcome challenges and excel at an activity. Stammering often contributes to a feeling of hopelessness that makes this less possible, and certainly there is no ‘quick fix’ for creating this belief. But one of the simplest things you can do is start exercising. One of the more interesting effects of exercising, beyond simply improving your health (also an important part of resilience), is that the act of exercising releases a neurotransmitter that improves your mood, whilst simultaneously burning away stress hormones. Combine that with improved strength, self-confidence, and the feeling of success when you meet exercise goals, and you’ll find that exercise has a profound effect on your ability to achieve a feeling of self-efficacy.

Social functioning

Healthy social functioning may be one of the tougher issues to address because it is developed, not necessarily learned in the sense that it is the result of years of experiences rather than the teachings of one person. Socialising with support groups is a great start, but there’s more that can be done.

One method of dealing with this issue is found in the dating world. Men needing dating tips are often instructed to mimic the behaviours of men that are successful with women, to get them used to what they ‘should’ be doing. Those that feel they have social issues as a result of their stammering may find that mimicking those without social issues helps them understand what they need to do so that the behaviours start to come more naturally.

In conclusion

One cannot become resilient overnight, and it may be an uphill battle. But those that find that anxiety affects their quality of life can find ways to deal with the stress, and the above tips may represent ways to start building personal resilience and overcome any of the mental health issues that stammering has contributed to.

*Fonte – http://www.stammering.org/resilience.html

Annunci

Resilienza e balbuzie

Stuttering and the Resilient Sense of Self

How fostering resilience can help us create full, successful lives.

Reslienza e balbuzie

In psicologia, la resilienza è la capacità di far fronte in maniera positiva agli eventi traumatici, di riorganizzare positivamente la propria vita dinanzi alle difficoltà. È la capacità di ricostruirsi restando sensibili alle opportunità positive che la vita offre, senza perdere la propria umanità.

Persone resilienti sono coloro che immerse in circostanze avverse riescono, nonostante tutto e talvolta contro ogni previsione, a fronteggiare efficacemente le contrarietà, a dare nuovo slancio alla propria esistenza e perfino a raggiungere mete importanti.

“Nobody worth your attention gives a damn if you stutter,” writes Cheryl Strayed, replying in her Rumpus Dear Sugar column to a woman who anonymously wrote to her as ‘Ashamed and Afraid’.

With her characteristic mix of tenderness and insight, Cheryl tells A & A, “It’s time for you to do the work you need to do to become the person you must be. That means tossing out the ugly and false notions you have about your stutter and taking in the fact that you have the power to redirect the blowtorch of your self-hatred and turn it into love.”

It is a beautiful piece, one that glues your eyes to the page and gives you whiplash from nodding your head so vigorously in agreement.

It is the type of writing that unifies us. Stuttering or not we all need to work on becoming the people we’re here to be. We all need to foster our own resilience, that ineffable quality that allows some people to be knocked down by life and and come back stronger than ever.

Strayed has that quality in spades and in my interviews for Out With It I saw resilience in the most successful stutterers I met. Stuttering might have battered their self-esteem for some part of their childhood, but they were not cowed by it. They described it as ‘toughening them up’, as ‘increasing their empathy’, as ‘instilling a fighting instinct.’ They were formed, rather than undone, by their struggle.

They were not unique, or superhuman, in their ability. We are all capable of astonishing resistance, coping, recovery and success. We just need to work out how we can withstand, rebound and transform the inevitable obstacles of our life into triumphs.

In The Resilience Factor, Karen Reivich and Andrew Shatte explain seven elements that anyone can cultivate to boost their own resilience:

1) Emotional regulation. The ability to respond appropriately in any given situation and control our emotions and behaviours so they are productive rather than knee-jerk reactions.

2) Impulse control. The necessity to notice our thoughts and sit with them for a moment, quietly, before we react.

3) Empathy. The capacity to understand and share the feelings of others, so we can keep ourselves from misreading situations.

4) Optimism. Not irrational optimism, rather the ability to believe that things can change for the better, to hope for the future, without denying the reality of our lives. The need to aspire and work towards positive outcomes without assuming that they are a forgone conclusions.

5) Causal analysis. The ability to accurately identify the causes of problems and think flexibility. The so-called father of positive psychology, Dr. Martin Seligman, focuses on explanatory styles as the habitual way we explain the good and the bad things that happen to us. The need to look for specific, limited, short-term explanations for bad events rather than seeing them as permanent, personal and pervasive.

6) Self-efficacy. The sense that we are effective in the world, the belief that we can succeed at solving our problems.

7) Reaching out. The intention to create nurturing relationships and strong social support. We often learn by mimicry and a resilient, trusting and supportive community incubates reserves of optimism and resilience.

All of us will face failure at some point in our lives. Those who have been shielded from difficulty, who have spent their life coddled and protected, are not always the most successful. Those who grow up battling against some form of adversity need more grit, more social intelligence and more self-control to create the kind of giant, full lives that they aspire to. If they can develop the strength to derive knowledge and meaning from their setbacks, they are at a significant character advantage. As the researcher Ann Masten puts it, “resilient children have the benefit of ordinary magic.”

* Fonter http://www.psychologytoday.com/blog/out-it/201309/stuttering-and-the-resilient-sense-self-0

Esiste una cura per la balbuzie?

Pubblichiamo un articolo della British Stammering Association riguardo la possibilità d’intervenire nella prevenzione e cura della balbuzie.

Is there a cure for stammering?

What do we mean by a ‘cure’?

BSA is frequently asked whether there is a cure for stammering. It’s a natural enough question, given that there are courses advertised which claim to offer a complete and final cure for stammering. In addition, it is a question that is quite likely to be in the minds of people who have had some experience of speech therapy, perhaps when they were a lot younger, but find themselves still struggling with their speech.

Unfortunately, there is no evidence of a universal cure for stammering – in other words, there is no approach that works like a magic pill for everyone. This situation is perhaps not so surprising when it is considered that there is still no complete answer to the question, ‘What causes stammering?’ Most experts agree that it is due to a combination of factors – physiological, neurological, psychological and environmental – but the precise ways that these factors operate together is not known, and clearly the combination will be different from one individual to another.

What is clear, then, is that stammering is a complex condition with many characteristics affecting each individual in a unique way. Whilst two people who stammer may sound similar to an outsider, the factors that trigger stammering, and reactions to stammering (both physical and emotional) can be very different. These aspects are highly personal and make it important to consider individual needs in any course of therapy.

Furthermore, while there are techniques which can be extremely helpful, these require ongoing practice to become effective. This is not the same as a ‘cure’ – which implies something administered by an expert which will work for everyone in all situations. People who claim to have found a cure for stammering often passionately believe they have something to offer. We do not suggest that their motives are anything other than genuine, but we believe these claims are misleading. BSA advises caution in respect of such courses and we do not publicise them in our literature or on our website.

Considerations for different age groups

Adults and older teenagers

As mentioned above, the search for a cure for stammering may be a particular issue for you if you had some NHS speech therapy when you were younger but did not manage to achieve or maintain the level of fluency you were hoping for. In this case, our recommendation is to try again, because therapy may well have changed – new developments are made regularly – and you may well have changed, too, and respond differently to what is offered. A speech and language therapist working in the NHS will not offer you a cure, but she or he will be able to offer you a range of approaches and techniques, and from these you can focus on the ones that you find most helpful. The therapist will support whatever choice you make. Whilst there are no guarantees, many people who work conscientiously and in a sustained way with these sorts of approaches and techniques make real progress, in terms of speaking more freely and feeling more at ease with themselves as communicators.

Looking at what’s on offer beyond NHS speech therapy, you may feel there is something to be gained from trying anything and everything – and this is obviously your personal decision. But please make your choice an informed one. If you decide to try a course or therapy which claims to cure stammering, you may well learn techniques which may help you speak fluently, in the short term. However, for ongoing fluency these techniques will need to be practised every day while you are at home and at work. Unless you are prepared for this, your time and money may be wasted. The ‘cure’, which may be promised while you are on the course, is unlikely to last of itself. Many of the techniques that are taught on such courses are familiar to speech and language therapists and we recommend that you first seek advice from these professionals.

School aged children

It is obviously distressing to see your child stammering and, as a result, perhaps struggling with issues of self-consciousness, lack of confidence, teasing and bullying. You may consider ‘anything’ to help your child, ‘no matter what the cost’. However, expectations of a ‘cure’ can lead to even greater difficulties and a sense of failure for both parents and children if it doesn’t work out. The experience may well put you both off trying other approaches in the future.

Most of the courses and therapies which claim a cure are aimed at teenagers and adults, but there may be some practitioners who accept younger children. We strongly recommend parents caution and that you instead seek advice from a qualified speech and language therapist who has experience of stammering. The most important issue at this stage is to help children who stammer develop self acceptance, and self confidence.

Pre-school aged children

Speech and language therapy has a high success rate in children under five years of age. Therapists carry out an assessment, taking into account many factors including the physiological and parent-child interactions. They may then choose to work in a variety of ways, indirectly or directly. The majority of children can be helped through these approaches and often have no recurring problems. However, it is not appropriate to think of this as a ‘cure’ because many children under 5 years go through a very normal phase of dysfluency anyway, and may just have grown through this phase. It is more accurate to say that these children have been supported at an early stage in a way that has prevented their early dysfluency from developing into a lasting stammer.

General recommendations

We recommend that you consider the following questions before deciding to pay for a private course or private therapy.

1) Is the person leading the course accountable to any registered professional body which is bound by a code of ethics? This is particularly important regarding therapies for children.

2) Does the person hold professional qualifications accredited by a professional body or institution? The Health Professions Council can verify this for you in the case of speech and language therapists – see their website at www.hpc-uk.org. It may well be that a person without professional qualifications can be of help to some people. However, it is important to note that, if you feel that you have been harmed by the treatment offered, either physically or psychologically, there is unlikely to be a professional body to which you can complain.

3) Is the person leading the course basically offering their own personal experience of a method which helped them? Don’t forget that, because of the individual nature of stammering, there is no guarantee that what helps one person will necessarily help another.

4) What is the cost and is it reasonable compared to other courses? What do the costs cover? Are there any financial guarantees? Is there a refund policy?

5) Is follow-up support offered to increase the chance for long term fluency? You are likely to need direct help and ongoing support from your therapist while you practise and phone calls are unlikely to be sufficient. A characteristic of stammering is that it is prone to relapse, so care and ongoing attention needs to be given to this.

6) What emotional support is available for you if you ‘fail’ the course? This can be an issue, especially if the course leader is one who tells you that you must be a failure for ‘failing to be fluent’.

Finally, with any form of therapy, it’s no doubt best, having made the decision to try it, to give it your best shot, rather than do it half-heartedly. If, in the end, it doesn’t work for you, you can at least be assured that it wasn’t for want of trying. All it means is that, at this point of time in your life, it is not the right approach for you. Don’t let anyone tell you otherwise!

PANDAS e BALBUZIE – Ricerca scientifica

PANDAS is an abbreviation for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections.

This diagnosis is used to describe a set of children who have a rapid onset of obsessive-compulsive disorder (OCD) and/or tic disorders such as Tourette syndrome (TS), following group A beta-hemolytic streptococcal (GABHS) infections such as “strep throat” and scarlet fever.[1] The proposed link between infection and these disorders is an autoimmune reaction, where antibodies produced by the infection interfere with neuronal cells.Though PANDAS is used to describe mainly the above disorders but according to recent research it can be associated with stuttering too.Given below is such a case study:-

We report the case of a 6-year-old male with the sudden onset of stuttering approximately 1 month after a documented streptococcal infection. The patient had no known family history of stuttering. Six months prior to an evaluation for stuttering, the patient presented to his pediatrician for complaints of a sore throat, fever, and general malaise. A rapid streptococcus antigen test was performed at the time and was found to be positive (Genzyme Strep A Test OSOM). Choosing to avoid medications, the parents declined antibiotics. One month later, the patient developed the acute onset of stuttering characterized by sound and syllable repetitions and silent blocking of speech. Threemonths later, he developed characteristic struggle behaviors of stuttering, facial grimaces and head twitches when a stuttering event occurred while speaking. Five and one-half months after his initial diagnosis of a streptococcal infection, the patient continued to have a positive rapid streptococcus antigen test, an antistreptolysin O (ASO) titer of 400 IU/ml (age-specific normal <200 IU/ml) and an antideoxyribonuclease B (anti-DNase B) titer of 387 U/ml (normal=0 to 70 U/ml). He then began amoxicillin/clavulanic acid, 800 mg/d for 10 days with near resolution of stuttering symptoms within 2 weeks. Streptococcal throat culture after the antibiotic course was negative. The patient remained without stuttering symptoms at the time of this submission (6 months later).

This case illustrates that stuttering in some individuals may be viewed as pediatric autoimmune neuropsychiatric disorder associated with streptococcal infections (PANDAS).1 The hypothesis involves that the antibodies created to fight the infection cross-react with the developing basal ganglia—a region of the brain implicated in stuttering etiology.2,3 PANDAS are characterized by a waxing/waning course, proposedinvolvement with the basal ganglia, pediatric onset, and neuropsychiatric symptoms often involving tic-like motions, all of which are associated with stuttering. This case is the first described in the literature of a documented streptococcal infection preceding stuttering weeks prior to onset. This patient’s recovery may have been spontaneous and unrelated to antibiotic therapy, which, in PANDAS, has been associated with mixed results.4 Although, the concept of PANDAS in other disorders remains open to debate, further research isindicated into this possible etiology of stuttering in a sub-set of individuals

No one has suggested that stuttering is a PANDAS disorder, but the three PANDAS disorders (Tourette’s, OCD, and tics) are genetically linked to stuttering, so perhaps PANDAS shouldn’t be ruled out in the development of stuttering.

The PANDAS theory is mainly used for Tourette’s syndrome but it can also be used for stuttering because three genes that correlate with stuttering also correlate with Tourette’s Syndrome.

Tourette’s and stuttering have many commonalities, suggesting that the neurology of Tourette’s may shed light on the neurology of stuttering. Stuttering happens frequently in Tourette’s syndrome. Many of the medications that help control tics also help stuttering. Abnormalities in the basal ganglia and the cortical motor systems may .

Touretters control the disorder by substituting more-acceptable tics. Stu The more a Touretter tries not to make a certain movement, or a stutterer tries not to stutter, the less he or she can control the behavior. tterers substitute words they can say.

Both Touretters and stutterers enjoy support groups, where they can “let go” and move or stutter without embarrassment.

Environmental cues can “switch off” Tourette’s and stuttering temporarily. E.g., a surgeon with Tourette’s has tics everywhere but the operating room.[9] Stress can “switch off” Tourette’s and stuttering temporarily.

Dopamine-blocking medications, such as Haldol, reduce both stuttering and Tourette’s. Both disorders run in families.

The prevalence of Tourette’s and adult stuttering is similar. Both disorders originate in childhood. Both disorders can be disabling, but Touretters and stutterers who achieve success say that their disordbe shared by both disorders.

Tourettec tics and stuttering disfluencies are embarrassinger was a gift.

But the concept of PANDAS is very complex in nature and hence is pretty controversial at the moment.It is probably for these reasons that PANDAS is currently not listed as a diagnosis by the International Statistical Classification of Diseases and Related Health Problems (ICD) or the Diagnostic and Statistical Manual of Mental Disorders (DSM).

Fonte – http://www.scribd.com/doc/60347522/Pandas-and-Stuttering

Approfondimenti – http://www.ocfoundation.org/pandas/ – https://www.aacp.com/Abstract.asp?AID=9159

Timi, io Amleto balbuziente

(ANSA) – ROMA – ”Ogni Amleto e’ uno spettacolo sul teatro, come diceva Stanislavskij. Il mio ruolo e’ quello di un balbuziente che non ci vede, insomma si cade sempre nella rappresentazione di se stessi”. Filippo Timi parla del suo ‘Amleto 2. Il popolo non ha il pane? Diamogli le brioche’, versione cinematografica di Felice Cappa del suo spettacolo teatrale dedicato a Shakespeare, oggi al Torino Film Festival. Timi ora sta ”preparando per il teatro – dice – un Don Giovanni tutto particolare”.

26 Novembre 2012 19:31 CULTURA E SPETTACOLO http://www.corriere.it/notizie-ultima-ora/Spettacolo/Timi-Amleto-balbuziente/26-11-2012/1-A_003827556.shtml

La cura dei bambini in età prescolare che balbettano – Ricerca CILD

 Descrizione e valutazione preliminare della famiglia

nell’orientamentamento al trattamento

Pubblichiamo l’abstract di un ricerca condotta dal CILD – Centro Italiano Logoterapia Dinamica di Milano sul trattamento delle disfluenze in età prescolare, presentato in occasione del 3° Workshop di Telemedicina della BALBUZIE – CILD Milano del 24 Novembre 2012 dal titolo TELELOGOPEDIA e pratica riabilitativa nella BALBUZIE”.

  • OBIETTIVO – La ricerca presenta la descrizione di un trattamento per bambini in età prescolare che balbettano incentrato sulla famiglia con le sue reazioni comportamentali alla balbuzie.
  • METODO – Lo studio ha coinvolto la valutazione dell’eloquio dei bambini attraverso un questionario di soddisfazione, cercando nei genitori giudizi riguardo gli aspetti favorevoli del  trattamento. Sono stati coinvolti 21 bambini di età compresa tra 36 e 72 mesi con le rispettive famiglie.
  • RISULTATI – Dalle risposte al questionario è emerso che il percorso di trattamento ha aiutato le famiglie a conoscere la balbuzie e le strategie che facilitano la fluenza dei bambini. La valutazione della fluenza dei bambini ha rivelato che tutti i partecipanti hanno raggiunto una maggiore fluidità migliorato a conclusione del trattamento a medio e lungo termine, anche attraverso l’apprezzamento dell’integrazione di strumenti di “telepresenza e telelogopedia“.
  • IMPLICAZIONI – I risultati dell’indagine suggeriscono che questo tipo di trattamento può essere utile per aiutare i bambini a raggiungere una migliore fluenza, una più efficace attitudine e capacità comunicativa del discorso 

 

 

Valutazione della fattibilità della telemedicina nelle patologie del linguaggio

Questo studio valutativo ha riguardato la fattibilità e l’esito delle consegne terepeutiche del linguaggio con servizi a distanza a bambini e adolescenti che balbettano (…)  I risultati hanno dimostrato che la videoconferenza interattiva iè n grado di fornire un piano realizzabile ed efficace modello di erogazione delle cure (…)  Tutti i partecipanti hanno mostrato un migliramento della fluidità . Prima del trattamento la  balbuzie variava dal 13% al 36% giungendo dal 2% al 26% dopo il trattamento. Tutti i partecipanti mantenuta almeno una parte della loro fluidità migliorata nel corso dei sei mesi di follow-up.

Lo studio dimostra che la valutazione completa e il trattamento di balbuzie in bambini e adolescenti può essere compiuta con successo via telemedicina.

Titolo originale – Feasibility and outcome evaluation of a telemedicine application in speech–language pathology”

  1. Claude Sicotte,  Department of Health Administration, Faculty of Medicine, University of Montreal, Quebec, Canada
  2. Pascale Lehoux, Department of Health Administration, Faculty of Medicine, University of Montreal, Quebec, Canada
  3. Julie Fortier-Blanc Department of Speech-Language Pathology, Faculty of Medicine, University of Montreal, Quebec, Canada
  4. Yves Leblanc Department of Health Administration, Faculty of Medicine, University of Montreal, Quebec, Cana

Abstract

This evaluative study assessed the feasibility and outcome of delivering speech–language services from a distance to children and adolescents who stutter. All six patients who formed the first cohort seen in the telespeech programme were included in the study. The results demonstrated that interactive videoconferencing can provide a feasible and effective care delivery model. Patient attendance was maintained throughout the intervention. All participants showed improved fluency. Stuttering ranged from 13% to 36% before treatment and 2% to 26% after treatment. All participants maintained at least part of their improved fluency during the six-month follow-up, when stuttering ranged from 4% to 32%.

The study demonstrates that full assessment and treatment of stuttering in children and adolescents can be accomplished successfully via telemedicine.           

Linee guida e dichiarazioni riguardo la Telemedicina

Telemedicina Health Standards, Guidelines & Statements*

American Medical Association. (2000). Guidelines for Patient-Physician Electronic Mail.
American Association of Marriage and Family Therapists. (2012). Code of Ethics.
American Counseling Association. (1999) (2005). ACA Code of Ethics.
American Mental Health Counselors Association. (2000). Code of Ethics of the American Mental Health Counselors Association, Principle 14, Internet On-Line Counseling.
American Psychological Association. (1997). APA Statement on Services by Telephone, Teleconferencing, and Internet, A statement by the Ethics Committee of the American Psychological Association.
American Psychological Association. (2010). Ethical principles of psychologists and code of conduct.
American Telemedicine Association. (2009). Evidence-Based Practice for Telemental Health.
American Telemedicine Association. (2009). Practice Guidelines for Videoconferencing-Based Telemental Health.
Australian Psychological Society. (2004). Guidelines for Providing Psychological Services and Products on the Internet.
British Psychological Society. (2009). The Provision of Psychological Services via the Internet and Other Non-direct Means
Canadian Psychological Association. (2006). Ethical Guidelines for Psychologists Providing Psychological Services via Electronic Media.
Federation of State Medical Boards of the United States, Inc., Report of the Special Committee on Professional Conduct and Ethics. (2002) Model guidelines for the appropriate use of the Internet in medical practice.
National Association of Social Workers. (1999) (2008). Code of Ethics.
National Board for Certified Counselors and Center for Credentialing and Education, (2001). The Practice of Internet Counseling. (2001).
New Zealand Psychological Psychologists Board (2011). Draft Guidelines: Psychology services delivered via the internet and other electronic media.
Ohio Psychological Association. (2010). Telepsychology Guidelines.
Royal Australian and New Zealand College of Psychiatrists: Telehealth Brief Guide to Address Practice Issues
Royal Australian and New Zealand College of Psychiatrists: Working with the Community

Published Articles of Particular Note

Nicholson, Ian R. (2011). New technology, old issues: Demonstrating the relevance of the Canadian Code of Ethics for Psychologists to the ever-sharper cutting edge of technology. Canadian Psychology/Psychologie Canadienne, 52, (3), pp. 215-224.
Winkler, M., Flanagin, A., Chi-Lum, B., White, J., Andrews, K., Kennett, R., DeAngelis, C. & Musacchio, R. (2000). Guidelines for medical and health information sites on the Internet. Journal of the American Medical Association, March 22/29, 283(12), pp. 1600-1606. Retrieved September 24, 2005 from

* Compiled in collaboration with Kenneth Drude, Ph.D. and revised by Marlene M. Maheu, Ph.D., June, 2012

Kate Forsyth: Le parole sono “schegge di vetro”

“Da adulto…nella mia mente, le parole sono melliflue come il  miele. Nella mia bocca, sono schegge di vetro…Il “Blocco” è il peggiore di questi…quando uno spasmo acuto muscolare impedisce di produrre alcun suono. Una  sospensione totale del discorso. Non posso dirvi quanto questo è  terribile”

Kate Forsyth è l’autrice di bestseller, di  libri illustrati, di poesie, di romanzi per bambini e adulti, con più di venti premi all’appello, “….ma ho combattuto tutta la mia vita con il mio st-st-st-st (balbuzie)… “

Mi è sempre sembrato uno scherzo crudele che la stessa  parola “balbuzie” sia difficile da pronunciare per molti balbuzienti. E  ‘onomatopeico, un’imitazione dello zoppicante, un suono ripetitivo fatto da persone con questa disfunzione del discorso. È interessante notare, non è solo  in inglese che la parola imita il suono. La parola egizia per la  balbuzie si chiama nit-nit , in Fiji kaka , in turco kekelmek , in Hindi khaha , e in  hawaiano UUS uu.

La guerra di parole … la lotta con la balbuzie è stata una  battaglia che ha combattuto la maggior parte della sua vita.

Ho lottato tutta la mia vita con la mia balbuzie. Per non parlare di tutti i miei difetti di pronuncia altre. Credo di avere ogni disturbo del linguaggio conosciuto per  logopedisti. Il più squisitamente divertente per quelli che vivono  con me sono i miei spoonerisms, il termine comune per ciò che i linguisti  chiamano “metatesi” – la trasposizione accidentale di lettere o sillabe. Ho problemi con i suoni “sh” e “ch” …. Dico ai miei figli pettina i denti e spazzola i capelli, (…).

(…)  Quando ero nella scuola primaria, un orda di bambini che cantano “KK-Katie,  KK-Katie” mi prendeva in giro. Temevo  il mio turno nella lettura ad alta voce a  scuola, e spesso, quando arrivava il mio turno, ero così bloccata la bocca che, torturata , era solo in grado di  produrre un suono come quello di una rana strangolata..

Da adulto…nella mia mente, le parole sono melliflue come il  miele. Nella mia bocca, sono schegge di vetro.

(…)

E ‘stata una battaglia per tutta la vita. Spesso, le  persone che mi incontrano ora non si rendono conto che sono sempre in guardia  contro la balbuzie. Ho passato la mia vita  imparare a non balbettare. Cerco di parlare più lentamente, a respirare più profondamente, per  dare il tempo per le mie corde vocali al passo con il mio  cervello.

 La maggior parte delle persone danno per scontato la capacità di  parlare, di discutere, di convincere, di comandare. Eppure, per una  come me, le parole sono come le palle dei fulmini – pericolose, infide e subdole. Ogni giorno sono alle prese con le parole nel cercare di sfruttare il loro potenziale terribile ai miei scopi, per far dire loro quello che voglio  che dicano. Non c’è nulla che appassionatamente si ammira più di un  conquistatore di parole, e niente che mi fa vergognare e mi umilia più che la mia sconfitta occasionale.

* Continua la lettura

Note letterarie:

Il suo libro più recente per gli adulti è di  Bitter Greens, una rivisitazione della fiaba Raperonzolo che intreccia con la drammatica storia di vita vera di una donna Charlotte-Rose de la Force.

Il suo libro più recente per i bambini è The Crown Starkin, un’avventura di fantasia eroica ambientata nel mondo magico di Estelliana, un luogo di magia selvaggia e mostri terrificanti.

I libri di Kate sono stati pubblicati in 14 paesi tra cui il Regno Unito, Stati Uniti, Russia, Germania, Giappone, Turchia, Spagna, Italia, Polonia e Slovenia. Attualmente sta intraprendendo un dottorato sulla favola presso la University of Technology, completando una laurea in Lettere e un Master in Scrittura Creativa.

BALBUZIE – Interrogativi per gli studiosi

Molti progressi sono stati effettuati nella gestione della balbuzie nei bambini in età scolare e negli adolescenti. Tuttavia, importanti interrogativi rimangono senza risposta riguardo le tecniche più efficaci e le strategie da utilizzare per aiutare gli studenti che balbettano al fine di ottenere una naturale maggiore fluidità.

Tutti siamo incoraggiati a continuare a costruire solide basi di conoscenze sostenendo la pratica clinica sulle evidenze .